Dare to Flare!

Just wanted to update everyone that I once again seem to be in a flare which has been really frustrating. I started school, of course got sick and also started to try to taper down off the prednisone that I have been trying to get off of since March! It was a bad combo of things and my body just decided to rebel. Thankfully it wasn’t as bad as May when I was in the hospital but I have had the most awful of my symptoms- nausea- for like a month now. So I ended up switching medicines from Infliximab infusions every month to Rinvoq- which is a yellow pill I take once a day. At least for the next 5 months. I’m currently on day 15 on Rinvoq and it does seem to be working- little by little! It’s slower than steroids but I can definitely tell each day it’s getting a little better. Anyone out there have any side effects to manage from their medicines?? I feel like this is the hardest part. While certain things feel better, I now feel like I have all these other annoying issues like headaches and exhaustion and I can’t tell if it’s related to the medicines or my UC! Anyway, I’m doing ok now - better than I was a few weeks ago. But I’m ready to put this disease in the can! Also here’s a new secret NYC Upper West Side bathroom hack:

https://www.instagram.com/reel/CyUfdvntHRe/ (https://www.instagram.com/reel/CyUfdvntHRe/)